SIC: In 2017, the carioca association of muscular dystrophy. ACADIMbased in Rio de Janeiro, Brazilinitiated the organization of the first Brazilian meeting of Muscular Dystrophy Associations and other organizations that defend the cause in various regions of Brazil.

The meeting also invited a number of organizations from South AmericaThis revealed the need to create a non-profit organization representing Latin American civil society organizations. This new organization would focus on to defend the interests of patients and their families, to lead public policies e influence multilateral organizations to ensure access to and guarantee of health care rights for those suffering from Muscular Dystrophy.